ICC meeting minutes, eNewsletters, and other news of interest to ICC member organizations.
2011 December 8 Congratulations to the new members of the Executive Committee and Planning Group of the Global Alliance Against Chronic Respiratory Diseases (GARD), who were elected at the recent GARD General Meeting. We are happy to see several members of the new GARD leadership who are also active in ICC: GARD Executive Committee: Dr. Jean Bousquet - Chair Dr. Nikolai Khaltaev - Vice Chair WHO Representative (Dr. Shanthi Mendis/Dr. Eugene Zheleznyakov) Dr. Arzu Yorgancioglu (elected by the Meeting) Dr. Alexander Chuchalin (nominated by WHO, GARD Chair and GARD Vice-Chair) GARD Planning Group: Representatives of professional organizations in the field of respiratory medicine: Dr. Talant Sooronbaev, KTS, Kyrgyzstan Dr. Mohammad Reza Masjedi, NRITLD, Iran Dr. Lan Le Thi Tuyet, Vietnam Representatives of professional organizations in the field of allergy: Dr. Piotr Kuna, Polish Society of Allergology, Poland Dr. Cezmi A. Akdis (EAACI), Turkey Representative of professional organizations in the field of primary care: Dr. Niels Chavannes (IPCRG) Representative of pharmacy, physiotherapy, nursing and other associations of professions allied to medicine: Ms. Monica Fletcher (Education for Health) Representative of organizations devoted to specific diseases: Dr. Osman Yusuf, The Allergy and Asthma Institute, ARIA Pakistan Representative of professional organizations in the field of pediatrics: Dr. Carlos Baena Cagnani, ARIA, Argentina Representative of patient organizations: Ms. Antje Fink Wagner (GAAP) Representative of governmental institutions: Dr. Rosado Pinto (Portuguese Ministry of Health) Representative of WHO Collaborating Centers: Dr. Hironori Sagara (WHO Collaborating Center, Japan) Representative of collaborating foundations: Dr. Yousser Mohammad, ICC, Syria Representative of the Country-Focus Group: Dr. Alvaro Cruz, Brazil Representative of the Working Groups: Ms. Teresa To (Toronto) 2010 Dr. V. P. Gopinathan, an ICC member from India, reports that a spirometry camp was held at Trichur on August 12 to raise awareness of the role of spirometry in early diagnosis of COPD. Faculty members of the Pulmonology Club interpreted the tests. The event, sponsored by CIPLA Respiratory, was also attended by a local legislative member and field staff. View photos of the spirometry camp. On June 30, the International COPD Coalition joined 6 other international respiratory organizations in supporting a Call to Action encouraging the EU and member states to develop a strategic, comprehensive, and integrated European approach to combating COPD. “ICC supports the Call to Action, which is a crucial part of the global effort to make COPD a political priority and to provide COPD patients with the rights they deserve,” said ICC Executive Director Larry Grouse, MD, PhD. Download a press release (PDF) about the Call to Action. ICC leaders met in Toronto on June 3 to discuss the development of an ICC Evidence-Based Resource Center, that will focus on bringing together and making accessible health and economic data related to COPD from around the world. To learn more about this project, please download the meeting minutes (PDF). The European Federation of Allergy and Airways Diseases Patients Associations (EFA), an ICC member organization, is holding an event at the European Parliament in Brussels on June 30 to launch a European Call to Action on COPD. Click here to download the program (PDF) for the event and learn more. Representatives from member organizations of the International COPD Coalition met on May 16, 2010 to review progress on the COPD Patients’ Bill of Rights initiative, begin planning a Second International Conference of COPD Patients, and make plans for other activities over the coming year. Download minutes of the meeting (PDF). 2009 Society faces a major threat to its productivity, health and welfare as millions of people in their most productive years struggle against a disease that is often undiagnosed or poorly managed. COPD hits millions of people, particularly those at the peak of their earning power – between the ages of 40 and 65. In the prime of their lives, and a time when they are caring for children and aging parents, as well as contributing to their communities, people with COPD are struggling to sustain an active, productive life. COPD Uncovered is the first initiative of its kind to investigate the economic, social, physical and emotional impact of COPD in the 40–65 years age group. It examines the growing costs of a condition that is rapidly becoming one of the world’s most serious health problems. COPD Uncovered represents the combined efforts of a multi-disciplinary committee of international experts, coming together to bring forward some of the most burning issues in COPD today. Their aim is to highlight the impact of COPD in an understudied and ignored patient segment between the ages of 40 and 65. The COPD Uncovered initiative is a compendium of research and analysis undertaken by experts in respiratory health. This initiative is sponsored by Novartis Pharma AG and is administered by a Secretariat from Chandler Chicco Companies (CCC). The studies underlying the COPD Uncovered Report were commissioned by Novartis Pharma AG. The COPD Uncovered Report, issued on World COPD Day 2009, is authored by the following individuals, supported by Novartis with editorial assistance from medical education specialists from CCC: Monica Fletcher, Chief Executive, Education for Health and principle lead for COPD Uncovered Dr Marianella Salapatas, President, European Federation of Allergy and Airways Diseases Patients' Associations Professor Thys van der Molen, Department of General Practice, University of Groningen John Walsh, President and CEO, COPD Foundation It is hoped that COPD Uncovered can inform much-needed discussion and policymaking to ensure that appropriate resources are provided for the management of COPD, and bring to light the compelling the reasons why we must invest in a generation of people who are essential to future sustainable and healthy global prosperity. The report is a first step in the initiative to illuminate the serious issues nations face with COPD sufferers in this age group. It sets the stage for the next phase in 2010 when COPD Uncovered will reveal results from the first international quantitative global survey of more than 2,000 COPD patients, 45-67, in six countries. This study will provide important insights into this critical population and provide additional evidence to push forward the agenda for better COPD management. To download the initial COPD Uncovered report, click here. Year of the Lung is coming! 2010 will be the Year of the Lung, a global awareness-raising effort being led by the international pulmonary research group FIRS. Tentative plans include press conferences, a visit to the European Parliament, and a World Spirometry Day. Stay tuned for more information to be shared on the ICC Website as this project develops. ICC Executive Committee Co-Chair Professor Yousser Mohammad has completed the development of a kit of educational materials for Arabic-speaking COPD patients. Her work indicates the advances that can be made in patient education when local cultures are considered, and provides a great example for other educators who are interested in locally targeted education programs. Unless otherwise noted, the components of the kit were coordinated by Dr. Yousser Mohammad and prepared by Dr. Mohammad in collaboration with the members of the Working Group for Education: Dr. Fatmeh Yassine, Dr. Jamal Alloush, and Dr. Bassam Abou El-Dahab. We invite you to download the pieces of the kit and be inspired! However, we ask that you do not use the kit materials in national education programs without specific permission from Dr. Mohammad. To contact Dr. Mohammad to discuss use of the kit materials, please click here.Click on the links below to download each piece of the kit: أدوية الداء الرئوي الانسدادي المزمن والصيام في رمضان PowerPoint presentation on treatment of COPD during Ramadan مواد تثقيفية أساسية للطبيب والممرض Additional educational materials for health care professionals مواد تثقيفية للمرضى وذويهم حول الداء الرئوي الانسدادي المزمن Educational materials for patients كيف تعيش مع الداء الرئوي الانسدادي الزمن – ترجمة الدكتور سمير السبعة Living with COPD Translated from www.efanet.org by Dr. Samir Al-Saba’a, Homs, Syria 2007 ICC is a member of the International COPD Patients in Action (ICOPA) Taskforce, which has recently released a report, "A COPD patient perspective: the need to build confidence and a positive outlook." The evidnce-based report calls for a more optimistic approach to the management of COPD. Download the report (PDF) Download a media backgrounder about the report (MS Word) Download a press release about the report (MS Word) Dr. Jochen Scheld recently undertook a survey of ICC member organizations regarding the situation of COPD patients in different countries around the world. He presented the results of the survey at the September 2007 ICC meeting in Stockholm, Sweden. Download a report (MS Word) detailing the results of the survey. Download a PowerPoint presentation based on the findings. 2006 Download minutes (PDF) from the May 28, 2006 Executive Committee meeting with sponsors. 2005 Download minutes (PDF) from the January 29, 2005 Executive Committee meeting with sponsors.
Congratulations to the new members of the Executive Committee and Planning Group of the Global Alliance Against Chronic Respiratory Diseases (GARD), who were elected at the recent GARD General Meeting. We are happy to see several members of the new GARD leadership who are also active in ICC:
GARD Executive Committee:
GARD Planning Group: Representatives of professional organizations in the field of respiratory medicine: Dr. Talant Sooronbaev, KTS, Kyrgyzstan Dr. Mohammad Reza Masjedi, NRITLD, Iran Dr. Lan Le Thi Tuyet, Vietnam Representatives of professional organizations in the field of allergy: Dr. Piotr Kuna, Polish Society of Allergology, Poland Dr. Cezmi A. Akdis (EAACI), Turkey Representative of professional organizations in the field of primary care: Dr. Niels Chavannes (IPCRG) Representative of pharmacy, physiotherapy, nursing and other associations of professions allied to medicine: Ms. Monica Fletcher (Education for Health) Representative of organizations devoted to specific diseases: Dr. Osman Yusuf, The Allergy and Asthma Institute, ARIA Pakistan Representative of professional organizations in the field of pediatrics: Dr. Carlos Baena Cagnani, ARIA, Argentina Representative of patient organizations: Ms. Antje Fink Wagner (GAAP) Representative of governmental institutions: Dr. Rosado Pinto (Portuguese Ministry of Health) Representative of WHO Collaborating Centers: Dr. Hironori Sagara (WHO Collaborating Center, Japan) Representative of collaborating foundations: Dr. Yousser Mohammad, ICC, Syria Representative of the Country-Focus Group: Dr. Alvaro Cruz, Brazil Representative of the Working Groups: Ms. Teresa To (Toronto)
Society faces a major threat to its productivity, health and welfare as millions of people in their most productive years struggle against a disease that is often undiagnosed or poorly managed. COPD hits millions of people, particularly those at the peak of their earning power – between the ages of 40 and 65. In the prime of their lives, and a time when they are caring for children and aging parents, as well as contributing to their communities, people with COPD are struggling to sustain an active, productive life. COPD Uncovered is the first initiative of its kind to investigate the economic, social, physical and emotional impact of COPD in the 40–65 years age group. It examines the growing costs of a condition that is rapidly becoming one of the world’s most serious health problems. COPD Uncovered represents the combined efforts of a multi-disciplinary committee of international experts, coming together to bring forward some of the most burning issues in COPD today. Their aim is to highlight the impact of COPD in an understudied and ignored patient segment between the ages of 40 and 65. The COPD Uncovered initiative is a compendium of research and analysis undertaken by experts in respiratory health. This initiative is sponsored by Novartis Pharma AG and is administered by a Secretariat from Chandler Chicco Companies (CCC). The studies underlying the COPD Uncovered Report were commissioned by Novartis Pharma AG. The COPD Uncovered Report, issued on World COPD Day 2009, is authored by the following individuals, supported by Novartis with editorial assistance from medical education specialists from CCC:
It is hoped that COPD Uncovered can inform much-needed discussion and policymaking to ensure that appropriate resources are provided for the management of COPD, and bring to light the compelling the reasons why we must invest in a generation of people who are essential to future sustainable and healthy global prosperity.
The report is a first step in the initiative to illuminate the serious issues nations face with COPD sufferers in this age group. It sets the stage for the next phase in 2010 when COPD Uncovered will reveal results from the first international quantitative global survey of more than 2,000 COPD patients, 45-67, in six countries. This study will provide important insights into this critical population and provide additional evidence to push forward the agenda for better COPD management. To download the initial COPD Uncovered report, click here.
Year of the Lung is coming! 2010 will be the Year of the Lung, a global awareness-raising effort being led by the international pulmonary research group FIRS. Tentative plans include press conferences, a visit to the European Parliament, and a World Spirometry Day. Stay tuned for more information to be shared on the ICC Website as this project develops.
ICC Executive Committee Co-Chair Professor Yousser Mohammad has completed the development of a kit of educational materials for Arabic-speaking COPD patients. Her work indicates the advances that can be made in patient education when local cultures are considered, and provides a great example for other educators who are interested in locally targeted education programs.
Unless otherwise noted, the components of the kit were coordinated by Dr. Yousser Mohammad and prepared by Dr. Mohammad in collaboration with the members of the Working Group for Education: Dr. Fatmeh Yassine, Dr. Jamal Alloush, and Dr. Bassam Abou El-Dahab.
We invite you to download the pieces of the kit and be inspired! However, we ask that you do not use the kit materials in national education programs without specific permission from Dr. Mohammad. To contact Dr. Mohammad to discuss use of the kit materials, please click here.
ICC is a member of the International COPD Patients in Action (ICOPA) Taskforce, which has recently released a report, "A COPD patient perspective: the need to build confidence and a positive outlook." The evidnce-based report calls for a more optimistic approach to the management of COPD. Download the report (PDF) Download a media backgrounder about the report (MS Word) Download a press release about the report (MS Word)